On July 08, 2008 I was diagnosed with MS but had no idea
what that meant. It is a hugely misunderstood disease, but a really awesome
lady, McCall Teicher, is working hard to change that. Her
efforts to raise MS awareness have really inspired me to speak up. Since 2009 I
have participated in the MS Walk with my team, the Cure Crusaders. We have
raised over $6000 so far and, with the help of incredibly supportive friends
and family, we are still going! But, as a whole, I don’t talk about my MS with
many people.
I’ve decided that’s not the way to help.
I have a responsibility to
talk about it so that it’s not such a mystery. For me MS is many different things,
depending on the day. Mostly I am more fatigued than I’ve ever been in my life
every day now. It’s a total body tired that makes brushing my teeth a real
chore some days. When I was diagnosed I was blind in my left eye, and
thankfully that sight has returned. I have Relapsing Remitting MS, which means
I have some symptoms all the time, but during a relapse I develop new or worsening
symptoms.
Writing is my outlet and
some days the MS brain fog won’t let me write. Other days I feel better, and
with the help of my amazing twitter buddies, get some serious words down! Each
week in March I will post something new about MS and what it means to carry it
around every day.
A few MS Facts:
-Approximately 2.5 million
people worldwide have MS, 400,000 in the US.
-No two people have the
same exact MS experience.
-There is currently no cure for MS.
-The
body’s own defense system attacks myelin, the fatty substance that surrounds and protects the
nerve fibers in the central nervous system.
-More than twice as many women as men have MS.
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